This suit sucks.

This suit sucks.

So here’s the latest. Sam can barely walk now, and that’s with me or John helping him. His left leg is just not doing any work. He absolutely cannot stand unless we are holding him up.

Again today he did not want to bring the teens to school or pick them up. He spent more time than usual sleepy and resting on the couch. He’s not really sleeping much throughout the day, but he is very out of it and not very interested in TV, cards, or dominoes.

He still wants to eat, but this is definitely a new low.

We continue to have visitors, but I caution you that we may cancel on you at the last minute.

Today marks one year since an adult saw him having a seizure and thus began our quest for treatment. Friday will mark one year since diagnosis.

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