Sep 06, 2013 Is it all downhill from here?
Sep 06, 2013
Looks like we’re heading slightly downhill. Again. Nothing major. Sam still walks with a spotter, stays awake most of the day, enjoys eating, wants to hang out in the kitchen when I cook, and usually makes it to the bathroom. Yesterday and today he’s seemed a little more spacey, he talks even less than before, and goes to sleep a little earlier and sleeps a little later. It’s a little change I don’t want to see, it means he’s slipped away from us a bit more.
Earlier this week we enjoyed a visit from Chris Beland and friends. Chris is a musician and he was asked by my new friend Heather to write a song for Sammy using as inspiration a poem she wrote about Sam, and his love of cooking and his animals (don’t call them stuffed). Chris and Heather came to our house with 2 musician friends and a videographer to present the song on Erev Rosh Hashanah. The song is sweet and beautiful and totally Sam. Go have a listen: Rocket Ship
Thursday night we got flocked!
Today Sam enjoyed a visit with Mrs. Hickey, who delivered Nanu eggs, played dominos, rode with me to the high school to pick up the teens, and made applesauce with Bubbe. We had Giada’s Vegetarian Lasagna (p. 94, Everyday Italian) for dinner.
Speaking of Giada, it seems I have friends with influence. We have had 3 separate offers of signed copies of Giada’s new children’s books from people who have been able to get in touch with Giada’s publicist or agent. Fabulous work, Team Sammy. Autographed books will be on their way soon!
Finally, thanks to those of you who have been posting your miles and hours of exercise for Sam. Keep them coming! There are a few places to post: Sammy Rulz, Cancer Droolz, Run for the White House for Childhood Cancer Awareness-Page, and Run for the White House for Childhood Cancer Awareness-Event. The event might be officially over, but cancer hasn’t stopped so why should we? Go check it out!